Date/Time
September 11, 2022 to September 11, 2022
11:00 AM
Description
After an empowering and impactful campaign last year, the SWFL Chapter of the FSHD Society is once again participating in the Walk & Roll to Cure FSHD - the only national event focused solely on funding progress for FSH Muscular Dystrophy.
FSHD is a degenerative muscle disease that causes progressive weakening of skeletal muscles. Little by little, it steals away patients’ strength and their ability to complete even the most basic tasks - like holding your child, brushing your hair, doing the laundry, and standing independently.
Though there is no cure, there is HOPE. Over 20 pharmaceutical companies are actively researching a cure, with clinical trials underway and on the horizon. You can be part of the movement to find a cure! Your contribution or attendance on September 11th gives hope to the nearly one million patients worldwide.